t: 01423 529614 e: andrew.jones.mp@parliament.uk
Andrew Jones Member of Parliament for Harrogate & Knaresborough

Andrew Jones MP

Member of Parliament for Harrogate & Knaresborough

ME/Chronic Fatigue Syndrome (CFS)

Thank you for contacting me about ME/Chronic Fatigue Syndrome (CFS). I know that this can be a painful and extremely debilitating condition, impacting on the quality of life of an individual.

I welcome ME Awareness Week and I hope it helps more people understand this condition, which can be so frustrating and distressing for many. While I understand that there is currently no cure for ME/CFS, I am aware there are treatments that may help to ease symptoms, although no one form of treatment may suit every patient. Patients should be involved in decision-making throughout every stage of their care. Furthermore, patients should be offered information about local and national self-help groups and support groups for people with ME/CFS and their carers.

I believe that research into this area is vital. The Medical Research Council (MRC) and the National Institute for Health Research welcome high quality applications for research into all aspects of ME/CFS. ME/CFS research is a current MRC priority area and so far over £2 million has been invested into this research area.

The majority of services for people with ME/CFS are the responsibility of local clinical commissioning groups. To assist diagnosis, the National Institute for Health and Care Excellence (NICE) produced clinical guidance on the diagnosis, treatment care and support of children and adults with ME/CFS.

You may be interested to know that NICE is currently reviewing these guidelines. This process will require thorough and careful consideration, and I understand that NICE expect to publish new guidelines on ME/CFS in 2020. I have been assured by my ministerial colleagues that these new guidelines will take into account patients’ concerns about the PACE trials and the effectiveness of some existing recommendations. I believe, therefore, that it would not be appropriate for Ministers to interfere in its important work.

I am unable to attend tomorrow’s Westminster Hall debate due to prior commitments, however, I will read the Hansard transcript of the debate with interest.

Thank you again for taking the time to contact me.

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